Endo-South Coast

​Highlighting One of The Brilliant Endometriosis Charities We Support

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Did you know that endometriosis is one of the leading causes of infertility in women? This is just one of the many reasons why we believe it is so important to support endometriosis charities and other non-profits working to empower women and enlighten others on the struggles faced today.

Our team's focus on inspirational women of Portsmouth is reflected not only in the work of one charity we support but also in the 'Endo Warriors' they are fighting for.
 
Endometriosis Southcoast is a charity that does amazing work in supporting the people who are affected by this awful condition. They provide much-needed resources and support, and they are fighting to make a big difference in the lives of people living with this diagnosis.

It is something that affects a huge proportion of people across the world, yet still remains a heavily taboo and under-researched topic. In order to continue inspiring our local communities and challenge stigmas as we see here - we work with endometriosis charities like this one to educate others and ignite tough conversations.

Explaining The ConditionEndometriosis is a systemic disease that affects the metabolism in the liver and adipose tissue. This leads to inflammation, pain sensitisation and mood disorders. As a result, many people suffer from severe pelvic pain, fertility problems, and other complications.

It is thought to affect around one in ten women of childbearing age, though this figure may be higher as many cases go undiagnosed. It often starts during puberty and can get worse over time.

Unfortunately, there is no cure and many of the treatments that manage the symptoms aren't that effective and are mainly medication that manipulate hormones of the reproductive system, surgery and lifestyle changes.

The exact cause is unknown, but it is thought to be due to a combination of genetic and hormonal factors. As a result of this, it can have a huge impact on someone's life, yet it is still relatively unknown in both the general population and the medical field.

If you would like to learn more about endometriosis charities, or if you are looking for support or advice on the condition itself, please visit Endometriosis Southcoast. Their website has a wealth of information, and they offer an incredible support network for those affected by this condition.

Adenomyosis. Another condition this charity is working to research and raise awareness of is adenomyosis, similar to endometriosis in a few ways but also differing enough that many people don't understand what separates the two.

Adenomyosis is when endometrial cells invade the muscle wall of the womb. This can cause heavy and painful periods, as well as pelvic pain and pressure.
 
There is a cure, however that cure is the removal of the womb (hysterectomy). Treatments are available to help manage the symptoms for those that do not want a hysterectomy; however they are mainly hormonal contraceptives and analgesics. Again, doctors are unsure of the cause..
 
Both of these conditions are extremely misunderstood by a lot of people. People often find themselves being victims of medical gaslighting or simply being misdiagnosed with things that present similar symptoms.
 
Some of the most common are IBS, depression, and anxiety.. In reality - this makes it so much harder for anyone to receive treatment that actually manages these symptoms and improves the quality of life.
 
Without endometriosis charities, this awareness and physical research may never escalate. Leaving so many people without the correct understanding is highly dangerous to these Endo warriors suffering from horrible pain and discomfort.

Like endometriosis, there is no cure. But treatments are available to help manage the symptoms. Again, doctors are unsure of the cause, although it seems to resolve itself after menopause in most women.

Both of these conditions are extremely misunderstood by a lot of people. Women often find themselves being victims of medical gaslighting or simply being misdiagnosed with things that present similar symptoms.

Some of the most common are IBS, depression, anxiety and PCOS. In reality - this makes it so much harder for anyone to receive treatment that actually manages these symptoms and improves the quality of life.

Without endometriosis charities, this awareness and physical research may never escalate. Leaving so many people without the correct understanding is highly dangerous to these Endowarriors suffering from horrible pain and discomfort.

Research to date Part of Endometriosis Southcoast's mission is to provide new and ongoing research into these conditions. This is in the hope that not only do more people understand where and how they can get support, but so the medical help provided can improve.

Some of the most recent research undertaken by this amazing charity are:

How Different Factors Affect Care Jodie, chair of trustees and research advisor was diagnosed at 29 after struggling with many life-altering symptoms. Now, she is completing her PhD, investigating the relationship between multiple different factors and the medical care of endo.

This includes comparing the health-related quality of life in patients of different ethnicities as well as those from different regions of the UK.

It is thought that women of Asian descent are 9 times more susceptible to this condition, so it is important to recognise whether ethnicity is a determining factor in care and the outcome of long-term treatment. It should not be this way, but many disparities have been found over the years already.

It has been noted that women wait an average of 10 minutes extra to receive pain relief in A&E compared to men, but when you are looking at an all-female group of sufferers, it is even more straightforward to determine any racial and ethnic disparities in the medical field.

Furthermore, Jodie is also looking at how being treated at British Society for Gynaecological Endoscopy (BSGE) accredited centres differs from standard gynaecological centres in the UK.

By reporting on these areas, the charity as a whole will have a wider foundation to move forwards and make changes in the way people suffering from these conditions receive treatment and ongoing support.

Menstruation Talking therapy Endometriosis charities across the country work to find new ways of managing these incurable conditions. One thing the team on the South Coast are doing is launching a study to investigate people's views on psychological treatment.

Many will undergo a large number of doctor appointments, invasive procedures and even surgery - trying different medications to manage pain and life-changing symptoms. But what happens when this doesn't work? When the list has been exhausted, is there anything else that can be done to improve quality of life?

Research into the possibility of talking therapies is few and far between. Here at Pamodzi Creatives, we know how valuable it can be to inspire new initiatives and involve the wider community.

This study asks anyone willing to share their thoughts on the matter and could lead to the investigation of a need for a separate women's health pathway within the NHS, another hopeful treatment for these painful conditions.

Why We Support Endometriosis Southcoast Pamodzi means together. And without a culture of togetherness, endometriosis charities like this one, or any non-profit for that matter, would not be able to carry out the necessary work and support they offer.

Also, our Inspirational Women of Portsmouth Project just simply wouldn't be complete without celebrating a team of such amazing, giving women like these. The positive impact they are making on the wider community is unmeasurable and will continue to make great headway for those who need their support.

Unfortunately, conditions generalised to a specific group like endo or adenomyosis are more likely to be scrutinised. With such little understanding of how or why it occurs, women all over are just being left in the dark about their own bodies.

It's time to speak up and utilise the resources we have. Only then will we begin to get the answers we need and people will begin taking control of their health once more.

How Can You Help? If you want to get involved with endometriosis charities, there are a few ways you can help.

You could volunteer your time and skills to help with social media, design work or even become a mentor for someone who needs support. If you have some extra cash to spare, you could make a one-off donation or set up a monthly payment to help with the running costs of the charity.

And finally, if you suffer from endometriosis yourself or know someone who does, spread awareness however you can. This might be through sharing this blog post, talking about your experiences on social media or even just having an open conversation with friends and family about what endometriosis is and how it affects people.

Also, if you'd like to take part in any of the research being carried out by the team on the South Coast, you can head over to their research page now and sign up.

The more we can grow each community and get people involved, the quicker we have a chance of seeing progress. This is an incredible team of women working so hard and remaining so hopeful for a better outcome in the quality of life and care for those suffering from endo and adenomyosis.

Pamodzi Means Together.

Our Mission Statement is to celebrate inspirational local stories and collaborate with creatives to challenge, affirm and inspire our communities. If you’d like to get involved or learn more about what we do - visit our website or social media today.

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